The 18th annual conference of the German Society for Epidemiology (DGEpi) took place in Würzburg from 26 to 28 September 2023. NFDI4Health participated in the conference and emphasized the importance of FAIRification of research data in health research. The focus of the NFDI4Health contributions was on 4 workshops on research data management and federated data analysis.
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The conference of the German Society for Medical Informatics, Biometry and Epidemiology (GMDS) took place in Heilbronn from 17 to 21 September 2023. The symposium for digital health research was hosted under the motto "Science. Close to the people" and attracted 800 participants from various scientific disciplines. Members of the NFDI4Health consortium attended the conference to present their strategy for a FAIR data infrastructure in health research to a broad audience.
NFDI4Health nahm mit etwa 15 Mitgliedern an der Jahrestagung der Deutschen Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie (GMDS) teil. Zum 68. Mal tage die Fachgesellschaft mit rund 800 Besucher:innen vom 17. bis 21. September 2023 in Heilbronn. Die Fachtagung bot eine Austauschplattform für Forschende aus medizin-informatischen, biometrischen und epidemiologischen Fachbereichen. Das Programm reichte von medizinischen Fortbildungen über eine Summer School für Nachwuchsforschende bis hin zu interdisziplinären Fachvorträgen.
"Connecting Communities" was the motto of the 1st Conference on Research Data Infrastructure (CoRDI) from 12 to 14 September 2023 in Karlsruhe. The National Research Data Infrastructure (NFDI) association invited national and international stakeholders to introduce their projects for excellent research data management. NFDI4Health presented an innovative concept for a sustainable and FAIR data infrastructure in health research.
In Germany, it is currently difficult to link health data from different sources. This impairs the quality of healthcare - especially in comparison with neighboring European countries. A new white paper identifies weaknesses and points to possible solutions.
On 30 August 2023 a draft for the Health Data Utilization Act (GDNG) was published. The Health Data Utilization Act aims to improve access to qualitative and representative health data so that they can be used promptly for care, public health, research and innovation and for the further development of the health system - in compliance with data protection requirements. This Act also takes the first steps to prepare the German health system for integration into a European health system within the framework of the European Health Data Space (EHDS).
Last week, we were finally able to meet again in person and discuss how to get health data FAIR - that is, Findable, Accessible, Interoperable, and Reusable. It was an exciting and productive few days!
Dr. Juliane Fluck, consortium coordinator of NFDI4Health, is a speaker at the Digital Health Data Space (DHDS23).