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German Portal for Medical Research Data (FDPG) - Expansion of the portal of the Medical Informatics Initiative into a central application for clinical, epidemiological, and public health studies.
With the German Portal for Medical Research Data (FDPG), NFDI4Health is further developing the central online portal of the Medical Informatics Initiative (MII) for clinical, epidemiological, and public health studies. The portal is aimed at researchers who want to conduct projects using already collected personal health data. The goal is to make research data from various data-holding organizations, such as universities and research institutes, accessible and re-usable for new research questions in compliance with data protection regulations.
Currently, there is no uniform regulation in Germany for the application process for the secondary use of personally identifiable health data. While there are already opportunities at various locations to request data for re-use, these procedures are not coordinated, and the portals are not interconnected. Thus, researchers have to individually request research data from the respective data-holding organizations, making the process time-consuming and complex.
NFDI4Health aims to simplify this process with the further development of the German Research Data Portal Health (FDPG) and significantly ease the reuse of health data for new research questions. The FDPG was launched by the Medical Informatics Initiative (MII) in September 2022 and has been in pilot operation for all researchers since mid-May 2023. The data request process and the associated data infrastructure are currently being tested based on initial usage projects
The application process
NFDI4Health conducts workshops to evaluate opportunities, risks, and limitations. With these workshops we built a community of relevant stakeholders who regularly engage in discussions to advance the goal of a central application portal.
