Deutsch 
Participation plays a central role for NFDI4Health – it strengthens patient-centred health research by deliberately incorporating the perspectives of citizens, patients, and those affected. Participation means that people outside of academia are involved in and help shape certain stages of the research process. NFDI4Health actively promotes this approach: four research projects in the field have been funded, and the research dialogue portal ResearchDialogue has been established to facilitate exchange between science and the public. Another important measure is the inclusion of patient representatives and study participants on the User Advisory Board of NFDI4Health. Their voices contribute to the strategic development of the initiative. In this way, NFDI4Health supports health research that is oriented towards the real needs and experiences of people.
Research Funding
As part of the call for proposals “Citizen Science, Participatory Quantitative Research, and Knowledge Transfer,” NFDI4Health has awarded a total of €100,000 in funding to four research projects in the fields of participation and citizen science in 2023:
ORIENTATE
Patient organisations as (co-)founders of data registries. A pilot project for the in-depth research participation.
PARES
Patient-centered development of appropriate communication forms of scientific results to participants in clinical trials.
