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Our aim is to facilitate the participation of users during the development of our concepts. In doing so, we flexibly incorporate the views, needs and priorities of the communities into our development processes. In concrete terms, this means organizing community workshops and workshop series on our infrastructure projects, regular training courses tailored to the needs of specific communities, and open feedback and evaluation rounds by users.
Interaction, networking and exchange with clinical research, epidemiological and public health communities are core activities of NFDI4Health. Only through the active participation of users concepts can be developed that meet the requirements of health-related research data management. Our activities are based on a participatory understanding of community engagement. The goal of our activities is to enter into dialogue with all relevant communities.
Personal health data are mainly collected and analyzed by physicians, epidemiologists, public health researchers, and biometricians. Researchers in epidemiology, medical biometry, medical informatics, public health, health services research, social medicine, and nutritional epidemiology, as well as researchers in clinical trials, thus form a large part of our user community. Many of them have a dual role as data holders and data users. Typically, data collections are stored in decentralized, autonomous data infrastructures that are intended to remain decentralized but need to be integrated into a common framework for centralized search and access.
In order to identify, concretize and address the specific needs of health research, NFDI4Health involves key stakeholders in this field as participants. To promote the acceptance and use of our developed concepts, NFDI4Health already involved the user community during the application phase and asked for the requirements and needs of the user community in a survey and discussed the objective of the application in a community workshop. NFDI4Health continues this engagement and actively involves the user community in the project.
Events
NFDI4Health at the DGEpi 2025
From 23 to 26 September 2025, the annual conference of the German Society for Epidemiology (DGEpi) will take place in Münster. Members of NFDI4Health will present how the development of sustainable in...
NFDI4Health at GMDS 2025
Engaging in dialogue with our community: From 7 to 10 September 2025, NFDI4Health will be represented at the GMDS Annual Conference in Jena. Through workshops, presentations and sessions, NFDI4Health ...
Webinar Meet-the-Data: Nationwide Cancer Registry Data Set
In the webinar series Meet-the-Data@ Gesundheitsforschung by NFDI4Health & BIH QUEST, leading research institutes present their valuable datasets from various fields of health sciences.
Participation
Participation plays a central role for NFDI4Health – it strengthens patient-centred health research by deliberately incorporating the perspectives of citizens, patients, and those affected.
Read MoreFAIR Training
The Data Train cross-disciplinary training program, a core element of the NFDI4Health training concept, aims to build the next generation of data-literate researchers in the biomedical sciences.
Read MoreCommunity Workshops
Mapping of the data competence landscape
A wide variety of data literacy training programs exist with diverse formats, topics of focus, and target groups. The aim of the workshop was to increase the visibility of these and to create an initial overview of the offerings.
Application forms for access to research data
What could application systems of the future look like?
What requirements must an application portal fulfill?
What meta-information must be captured for federated data analysis?
