The 22nd German Congress for Health Services Research will take place under the motto "Health-related health services research - engine of evidence-based health policy" from 4 to 6 October 2023 in Berlin. NFDI4Health is organizing the symposium "Participatory research and citizen science: NFDI4Health projects introduce themselves" on 4 October 2023 from 16:45 to 18:15.
In Germany, it is currently difficult to link health data from different sources. This impairs the quality of healthcare - especially in comparison with neighboring European countries. A new white paper identifies weaknesses and points to possible solutions.
On 30 August 2023 a draft for the Health Data Use Act (GDNG) was published. The Health Data Use Act aims to improve access to qualitative and representative health data so that they can be used promptly for care, public health, research and innovation and for the further development of the health system - in compliance with data protection requirements. This Act also takes the first steps to prepare the German health system for integration into a European health system within the framework of the European Health Data Space (EHDS).
"Epidemiology in Transition - Innovations and Challenges" is the motto of the 18th Annual Meeting of the German Society for Epidemiology (DGEpi). The event will take place in Würzburg from the 26th till 28th of September 2023.
"Science. Close to the people" is the motto of this year's annual conference of the German Society for Medical Informatics, Biometry and Epidemiology. NFDI4Health uses this opportunity to make our latest methods and developments visible to the broad professional audience while actively shaping current public discussions.
Research data form the basis for knowledge and innovation throughout all scientific disciplines. They play a fundamental role in the progress of our society. The key to using these data treasures is an effective infrastructure. With the first edition of the Conference on Research Data Infrastructure from 12 to 14 September 2023, the Association German National Research Data Infrastructure (NFDI) is initiating a conference that will focus on establishing interdisciplinary research data management (RDM).
Dr. Juliane Fluck, consortium coordinator of NFDI4Health, is a speaker at the Digital Health Data Space (DHDS23).
NFDI4Health was represented at the Dataverse Community Meeting 2023, which was held at the University of Minho in Braga, Portugal, from June 5th to June 7th, by Johannes Darms and Vera Clemens. Dataverse is an open-source software designed for research data management, facilitating the dissemination of FAIR research data across various disciplines. The Community Meeting brought together developers and users of the Dataverse software from various backgrounds to discuss and exchange knowledge.
In the last week before the summerbreak of the German Bundestag, the Committee for Education, Research, and Technology Assessment held a public consultation on the topic "Data use in health research". On July 5 Professor Juliane Fluck, NFDI4Health spokesperson and NFDI representative in the field of health, was invited as an expert.
Children and adolescents were particularly affected by the COVID-19 pandemic. However, good data proving the concrete consequences has often been lacking or difficult to find. A new cooperation between the coverCHILD and NFDI4Health projects aims to change this. At the centre of the cooperation is the German Central Health Study Hub, which enables coverCHILD to make study results on COVID-19 and its consequences for children and adolescents easier to find.
On 20 and 21 June, the Federal Ministry of Health organised the "Data for Health Conference 2023". Leading experts from the USA and Europe discussed the framework conditions and possibilities for the use of health data. NFDI4Health took the opportunity to present two innovative approaches based on Code2Data technology to the expert audience from science and politics.
It is currently difficult to conduct research on international health data. What problems exist, how the hurdles can be overcome, how data can remain secure but still make more research possible - this is the topic of an international health data congress on 20-21 June 2023 in Berlin. The NFDI4Health will be there.