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In Germany, it is currently difficult to link health data from different sources. This impairs the quality of healthcare - especially in comparison with neighboring European countries. A new white paper identifies weaknesses and points to possible solutions.
On 30 August 2023 a draft for the Health Data Utilization Act (GDNG) was published. The Health Data Utilization Act aims to improve access to qualitative and representative health data so that they can be used promptly for care, public health, research and innovation and for the further development of the health system - in compliance with data protection requirements. This Act also takes the first steps to prepare the German health system for integration into a European health system within the framework of the European Health Data Space (EHDS).
NFDI4Health was represented at the Dataverse Community Meeting 2023, which was held at the University of Minho in Braga, Portugal, from June 5th to June 7th, by Johannes Darms and Vera Clemens. Dataverse is an open-source software designed for research data management, facilitating the dissemination of FAIR research data across various disciplines. The Community Meeting brought together developers and users of the Dataverse software from various backgrounds to discuss and exchange knowledge.
Last week, we were finally able to meet again in person and discuss how to get health data FAIR - that is, Findable, Accessible, Interoperable, and Reusable. It was an exciting and productive few days!
In the last week before the summerbreak of the German Bundestag, the Committee for Education, Research, and Technology Assessment held a public consultation on the topic "Data use in health research". On July 5 Professor Juliane Fluck, NFDI4Health spokesperson and NFDI representative in the field of health, was invited as an expert.
Dr. Juliane Fluck, consortium coordinator of NFDI4Health, is a speaker at the Digital Health Data Space (DHDS23).
On 20 and 21 June, the Federal Ministry of Health organised the "Data for Health Conference 2023". Leading experts from the USA and Europe discussed the framework conditions and possibilities for the use of health data. NFDI4Health took the opportunity to present two innovative approaches based on Code2Data technology to the expert audience from science and politics.
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