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NFDI4Health
National Research Data Infrastructure for Personal Health Data
News
German Centres for Health Research (DZG) and NFDI4Health Intensify Cooperation
NFDI4Health at the DataSHIELD Conference 2025
NFDI4Health at GMDS 2025: Workshops, Conclusion, and Networking
Events
NFDI4Health at the DGEpi 2025
NFDI4Health at GMDS 2025
Webinar Meet-the-Data: Nationwide Cancer Registry Data Set
What is NFDI4Health?
The NFDI4Health initiative – the National Research Data Infrastructure for Personal Health Data – makes research data from health research more findable, accessible, and reusable. It connects researchers and stakeholders in the healthcare sector to share data in accordance with data protection regulations and ethical principles, and to create new opportunities for data analysis.
The mission of NFDI4Health is to provide new opportunities for the scientific use of personal health data while respecting privacy requirements. Based on the FAIR principles, services are provided to researchers to permanently store, semantically enrich and share data in interoperable form and to merge data from different sources.
NFDI4Health pursues five main objectives:
- Further expansion and optimisation of our infrastructures and services for FAIR health data
- Ensuring the sustainability, interoperability, and quality of our offerings
- Promoting a cultural shift towards FAIR data sharing in the health sector
- Involving a broad community and the general public
- Fostering the implementation of the European Health Data Space
NFDI4Health increases the performance and quality of health science research and thus helps to improve the health of the population. NFDI4Health will achieve this aim by increasing the national and international visibility of health science research, by strengthening the reputation of researchers who share their data, and by fostering new collaborations. The resulting infrastructures will bridge the gap between users and providers of epidemiological, public health and clinical trial data.
The consortium consists of an interdisciplinary team of 14 partner institutions. In addition, 52 renowned institutions and individuals from the healthcare sector have confirmed their participation, and letters of support have been received from eight (inter)national institutions.
NFDI4Health provides a technical infrastructure and efficient services for FAIR health data. The aim of these services is to make data from health research findable and accessible, while ensuring data protection and adherence to ethical standards. Users are also supported through a wide range of support and training services.
Participation
Community
Participation
Participation plays a central role for NFDI4Health – it strengthens patient-centred health research by deliberately incorporating the perspectives of citizens, patients, and those affected.
Make your data FAIR…with NFDI4Health!
Our Partners
Funding
The partners of the NFDI consortium NFDI4Health are funded by the German Research Foundation (DFG) within the framework of the “Agreement between the Federal Government and the Länder Concerning the Establishment and Funding of a National Research Data Infrastructure” of 26 November 2018. To coordinate the activities, the partners of NFDI4Health participate as far as possible as members in the National Research Data Infrastructure (NFDI) e. V. association and participate in the various bodies and other structures of the association in accordance with its statutes.
