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Research data form the basis for knowledge and innovation throughout all scientific disciplines. They play a fundamental role in the progress of our society. The key to using these data treasures is an effective infrastructure. With the first edition of the Conference on Research Data Infrastructure from 12 to 14 September 2023, the Association German National Research Data Infrastructure (NFDI) is initiating a conference that will focus on establishing interdisciplinary research data management (RDM).
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Last week, we were finally able to meet again in person and discuss how to get health data FAIR - that is, Findable, Accessible, Interoperable, and Reusable. It was an exciting and productive few days!
Dr. Juliane Fluck, consortium coordinator of NFDI4Health, is a speaker at the Digital Health Data Space (DHDS23).
NFDI4Health was represented at the Dataverse Community Meeting 2023, which was held at the University of Minho in Braga, Portugal, from June 5th to June 7th, by Johannes Darms and Vera Clemens. Dataverse is an open-source software designed for research data management, facilitating the dissemination of FAIR research data across various disciplines. The Community Meeting brought together developers and users of the Dataverse software from various backgrounds to discuss and exchange knowledge.
In the last week before the summerbreak of the German Bundestag, the Committee for Education, Research, and Technology Assessment held a public consultation on the topic "Data use in health research". On July 5 Professor Juliane Fluck, NFDI4Health spokesperson and NFDI representative in the field of health, was invited as an expert.
On June 26 and 27, a cross-national exchange on current concepts, methods and tools of clinical research data in the European context took place in Berlin.
Children and adolescents were particularly affected by the COVID-19 pandemic. However, good data proving the concrete consequences has often been lacking or difficult to find. A new cooperation between the coverCHILD and NFDI4Health projects aims to change this. At the centre of the cooperation is the German Central Health Study Hub, which enables coverCHILD to make study results on COVID-19 and its consequences for children and adolescents easier to find.
