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Last week, we were finally able to meet again in person and discuss how to get health data FAIR - that is, Findable, Accessible, Interoperable, and Reusable. It was an exciting and productive few days!
News
Dr. Juliane Fluck, consortium coordinator of NFDI4Health, is a speaker at the Digital Health Data Space (DHDS23).
NFDI4Health was represented at the Dataverse Community Meeting 2023, which was held at the University of Minho in Braga, Portugal, from June 5th to June 7th, by Johannes Darms and Vera Clemens. Dataverse is an open-source software designed for research data management, facilitating the dissemination of FAIR research data across various disciplines. The Community Meeting brought together developers and users of the Dataverse software from various backgrounds to discuss and exchange knowledge.
In the last week before the summerbreak of the German Bundestag, the Committee for Education, Research, and Technology Assessment held a public consultation on the topic "Data use in health research". On July 5 Professor Juliane Fluck, NFDI4Health spokesperson and NFDI representative in the field of health, was invited as an expert.
On June 26 and 27, a cross-national exchange on current concepts, methods and tools of clinical research data in the European context took place in Berlin.
Children and adolescents were particularly affected by the COVID-19 pandemic. However, good data proving the concrete consequences has often been lacking or difficult to find. A new cooperation between the coverCHILD and NFDI4Health projects aims to change this. At the centre of the cooperation is the German Central Health Study Hub, which enables coverCHILD to make study results on COVID-19 and its consequences for children and adolescents easier to find.
On 20 and 21 June, the Federal Ministry of Health organised the "Data for Health Conference 2023". Leading experts from the USA and Europe discussed the framework conditions and possibilities for the use of health data. NFDI4Health took the opportunity to present two innovative approaches based on Code2Data technology to the expert audience from science and politics.
