Events

Participants will gain a comprehensive understanding of SPEs, including their role in enabling safe and efficient use of sensitive health data and supporting FAIR principles. Perspectives from three key stakeholder groups — data users, data holders, and technology providers — are shown to offer insights into their roles, challenges, and priorities. Real-world case studies, practical guidance, and interactive discussions provide insights into the effective implementation and use of SPEs and can initiate a community building process. The third event in the series will take place on 20 June 2026 at 4.00 pm:

Steps to Bring Data into an SPE
The implementation of FAIR principles is essential for maximizing the value and reproducibility of scientific research, particularly within fragmented medical data landscapes. This work documents the ""FAIRification journey"" of the German Center for Diabetes Research (DZD) Core Data Set (CDS), a mandatory framework designed to harmonize clinical parameters across multicenter studies. The process involved a two-fold approach: conducting a baseline assessment using the Research Data Alliance FAIR Data Maturity Model (RDA-FDMM) to identify gaps and subsequently implementing targeted FAIRification measures.

Date & Time: 17. June 2026  | 16:00 - 17:00
Lecturer: Esther T. Inau | Universitätsmedizin Greifswald
Format: online via zoom 
Registration: [here]