Central Access Point - central application portal for health data
With the Central Access Point, NFDI4Health is developing a central online portal for researchers who want to conduct research projects based on already collected personally identifiable health data. The goal is to make research data from various data-holding organizations, such as universities and research institutes, accessible and re-usable for new research questions in compliance with data protection regulations.
Currently, there is no uniform regulation in Germany for the application process for the secondary use of personally identifiable health data. While there are already opportunities at various locations to request data for re-use, these procedures are not coordinated, and the portals are not interconnected. Thus, researchers have to individually request research data from the respective data-holding organizations, making the process time-consuming and complex.
NFDI4Health aims to simplify this process and significantly facilitate the re-use of health data for new research projects with the Central Access Point. We collaborate closely with various key stakeholders to optimize synergies. A collaboration between NFDI4Health and the Forschungsdatenportal Gesundheit (FDPG) is intended to further advance this initiative. The FDPG was released as part of the Medical Informatics Initiative (MII) in September 2022 and has been in pilot operation for all researchers since mid-May 2023. The data request and the associated data infrastructure are currently being tested based on initial usage projects.
The German Central Health Study Hub allows researchers to publish their project characteristics, documents and data related to their research project in a FAIR manner or to find information about past and ongoing studies.
The Data Train cross-disciplinary graduate training programme, a core element of the NFDI4Health training approach, aims at building the next generation of data-savvy researchers in the biomedical sciences.
Health data, as collected in clinical trials and epidemiological, as well as public health studies, cannot be freely published, but are valuable datasets whose reuse is of high importance for health research. NFDI4Health has established a metadata standard and process for the publication of health studies to make health data FAIR.