News archive

09-10-2020

NFDI4Health Grey Literatur Released

The so-called grey literature of NFDI4Health are now published both in the repository of life sciences and on Zenodo.

The Global Research Data Alliance community response to the global COVID-19 pandemic

Data drives rapid response and informed decision making during public health emergencies. There is a need for timely and accurate collection, reporting and sharing of data with the research community, public health practitioners, clinicians and policy makers. Accurate and rapid availability of data will inform assessment of the severity, spread and impact of a pandemic to implement efficient and effective response strategies.

The Research Data Alliance (RDA) is a volunteer community of over 10,500 professionals from 145 countries across the globe. In less than two months, the community responded to an urgent call for action and defined much needed, comprehensive recommendations and guidelines for data sharing under the present COVID-19 circumstances.

On 28 May 2020 the RDA published the pre-final version of the RDA COVID-19 Recommendations and Guidelines covering four research areas – clinical data, omics practices, epidemiology and social sciences. This document is also complimented by overarching areas focusing on legal and ethical considerations, research software, community participation and indigenous data. On the RDA-website you can find further information.

Open Data Impact Award

The “Stifterverband” has launched an award to strengthen open data in science. The “Open Data Impact Award” is endowed with a total of 30,000 euros.
With the award the Stifterverband supports exemplary ideas of how open data can be lived at universities in Germany. Scientists or research groups from all disciplines at universities or non-university research institutions can apply now. The prerequisite is that they have made their research data open and have made it possible to use it outside of science in an innovative way, or that they have the potential for a social impact in the reuse of their data.
With the Open Data Impact Award, the Stifterverband wants to make the best open data concepts visible. The application deadline for all submissions is June 30, 2020. Here you can find further information.

NFDI4Health statement on Cross-Cutting Topics

Members of eleven nfdi-consortia met in August 2019 to discuss common challenges posed by envisioned interoperability and data sharing across disciplines. During this process Cross-Cutting Topics and their joint elaboration have been identified as an important structural element for sustainable functionality of the nfdi. As a first result 21 consortia agreed on a common list of cross-cutting topics, published in the Berlin declaration. You can find it here

In February 2020, members of 14 consortia and 7 cross-cutting initiatives therefore met to discuss opportunities and challenges for a joint development of a national research data infrastructure.

NFDI4Health welcomes and supports collaborative development of the Cross-Cutting Topics. We have therefore decided to follow the example of nfdi4chem to publish the chapter „The Consortium within the nfdi“ on the Cross-Cutting Topics describing our ideas as a contribution to an open and joint discussion of Cross-Cutting Topics.

You can download the PDF here

[In German]: Hervorragendes Votum der Gutachtergruppe für NFDI4Health

Liebe NFDI4Health Community,

wir hatten sie ja im Dezember über die Evaluierung von NFDI4Health informiert. Jetzt haben wir die Ergebnisse:

Das ganze NFDI4Health-Team freut sich sehr, Ihnen mitteilen zu können, dass unser Konzept auf der ganzen Linie erfolgreich war und das Votum der Gutachtergruppe außerordentlich positiv ausgefallen ist, wie Sie diesem kurzen Auszug entnehmen können:

„NFDI4Health bringt eine Vielzahl an relevanten Forschungsinstitutionen im Bereich der Medizin zusammen. Die inhaltliche Fokussierung auf gut strukturierte und überwiegend qualitativ hochwertige Datensätze aus klinischen Studien, der Public-Heath-Forschung und epidemiologischen Fragestellungen ist nachvollziehbar und sinnvoll. (…) Mit Blick auf die medizinische Forschung, muss eine Struktur, wie hier vorgeschlagen, zwingend vorhanden sein. Die Ansätze könnten sogar eine Vorbildfunktion im europäischen Forschungsraum einnehmen.“

Verbreiten Sie diese Information gerne in Ihrem Kollegenkreis und bei weiteren interessierten Institutionen.

Wie geht es weiter?

Am 23.-24. März wird die Sitzung des Expertengremiums seine Förderempfehlungen an die GWK weitergeben.

Am 26. Juni 2020 wird die GWK die endgültige Förderentscheidung treffen

Bei einer positiven Entscheidung erfolgt die Förderung für die NFDI4Health ab 01.Oktober 2020. Um frühzeitig mit Ihnen das weitere Vorgehen zu planen, möchten wir Sie daher gerne zu einem weiteren Community-Workshop am 27.10.2020 in Göttingen einladen, der im Rahmen unserer geplanten Auftaktveranstaltung stattfinden wird. Bitte merken Sie sich schon jetzt diesen Termin vor.

Außerdem werden wir das Jahr nutzen, um auf verschiedenen Konferenzen und Workshops national und international das NFDI4Health Konzept vorzustellen.

Wir freuen uns sehr auf Ihre Beteiligung und Rückmeldung.

Liebe Grüße

Juliane Fluck im Namen des gesamten NFDI4Health Teams

New Poster in January

We have developed a poster for NFDI4Health to inform the community, politicians or other stakeholders about our project. At the moment it is just available in german. You can download it here.

Assessment of NFDI4Health in December

Dear NFDI4Health community,

NFDI4Health was assessed on December 2nd and 3rd together with two other consortia. These were two long and demanding days in Bonn. NFDI4Health was represented by Iris Pigeot, Markus Löffler, Ulrich Sax, Carsten Oliver Schmidt and me.

We have to wait a bit for the result: In the end of January we will probably receive the comments from the review group and can then react to them until the end of February. In summer 2020, the decision on funding from the Joint Science Conference (GWK) will be made. If the vote is positive, funding will start in October 2020.

Please keep your fingers crossed that we will be evaluated positively and get the chance to build NFDI4Health together with you!

Best wishes and a peaceful Christmas season

Juliane Fluck on behalf of the entire NFDI4Health team

Berlin Declaration on nfdi Cross-Cutting Topics

” In the spirit of our common interest to build what could become an international beacon for sharing the benefits of high-quality research data and research data management, the signing nfdi consortia strongly support the idea that nfdi must build on a coordinated and inclusive effort fostering the FAIR data principles. Recalling the challenges that interoperability and sharing of data faces, the 21 consortia signing this declaration agreed on a common list of cross-cutting topics.” Read more.

NFDI4Health at the GMDS and the DGEpi

In September 2019 Prof. Dr. Juliane Fluck was speaking about the NFDI4Health at the annual meeting of the German Association for Medical Informatics, Biometry and Epidemiology (GMDS). She used the opportunity to discuss the idea of NFDI4Health with an expert community. Klick here to see the poster she used and that was also presented and discussed at the annual meeting of the DGEpi in Ulm.

Community workshop NFDI4Health

Prof. Dr. Juliane Fluck speaks at the community workshop.

The initiative NFDI4Health – National Research Data Infrastructur for Personal Health Data invited to the University of Cologne on June 25, 2019 (11:00 a.m. – 16:30 p.m.).

On Nov. 16th 2018, the GWK (Gemeinsame Wissenschaftskonferenz) has decided to fund the establishment of a national research data infrastructure (NFDI) in Germany. Over the next 10 years, up to 30 nfdi consortia will be funded. In this context, ZB MED – Information Centre for Life Sciences, the Leibniz Institute for Prevention Research and Epidemiology – BIPS, and the Institute for Medical Informatics, Statistics and Epidemiology (IMISE, University Leipzig) plan to submit a proposal together with other partners to establish a national research data infrastructure for personal health data.

The community workshop specifically addressed individuals who generate, manage or jointly analyse large volumes of data from clinical, epidemiological or public health studies, as well as health-related registries or administrative healthcare databases. We presented the preliminary proposal for a national research data infrastructure for personal health data and afterwards enterd into a direct exchange with the particpants on the needs of potential users.

Some results of the workshop.

Here you can find a summary of the workshop (in German).