Berlin Declaration on NFDI Cross-Cutting Topics

“ In the spirit of our common interest to build what could become an international beacon for sharing the benefits of high-quality research data and research data management, the signing NFDI consortia strongly support the idea that NFDI must build on a coordinated and inclusive effort fostering the FAIR data principles. Recalling the challenges that interoperability and sharing of data faces, the 21 consortia signing this declaration agreed on a common list of cross-cutting topics.“ Read more.

NFDI4Health at the GMDS and the DGEpi

In September 2019 Prof. Dr. Juliane Fluck was speaking about the NFDI4Health at the annual meeting of the German Association for Medical Informatics, Biometry and Epidemiology (GMDS). She used the opportunity to discuss the idea of NFDI4Health with an expert community. Klick here to see the poster she used and that was also presented and discussed at the annual meeting of the DGEpi in Ulm.

Community workshop NFDI4Health

Prof. Dr. Juliane Fluck speaks at the community workshop.

The initiative NFDI4Health – National Research Data Infrastructur for Personal Health Data invited to the University of Cologne on June 25, 2019 (11:00 a.m. – 16:30 p.m.).

On Nov. 16th 2018, the GWK (Gemeinsame Wissenschaftskonferenz) has decided to fund the establishment of a national research data infrastructure (NFDI) in Germany. Over the next 10 years, up to 30 NFDI consortia will be funded. In this context, ZB MED – Information Centre for Life Sciences, the Leibniz Institute for Prevention Research and Epidemiology – BIPS, and the Institute for Medical Informatics, Statistics and Epidemiology (IMISE, University Leipzig) plan to submit a proposal together with other partners to establish a national research data infrastructure for personal health data.

The community workshop specifically addressed individuals who generate, manage or jointly analyse large volumes of data from clinical, epidemiological or public health studies, as well as health-related registries or administrative healthcare databases. We presented the preliminary proposal for a national research data infrastructure for personal health data and afterwards enterd into a direct exchange with the particpants on the needs of potential users.

Some results of the workshop.

Here you can find a summary of the workshop (in German).